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*  PATIENTS EDUCATION AND SUPPORT

                       

                        *        MERCK MANUAL – HOME EDITION

                        *        OFFICIAL HEALTH SOURCE-BOOKS                                      

                        *        PATIENT EDUCATION

 

                        *        Health Encyclopedia from PersonalMD

                        *        Pediatric Health Encyclopedia

                        *        The Iowa Clinic Medical Encyclopedia

                       

                        *        KidsDoctor: What Every Parent Needs to Know

                        *        Harvard Medical School’s Consumer Health Information

                        *        MEDEM MEDICAL LIBRARY – Am Academy of Pediatrics

 

                        *        DOCTORS ONLINE

                        *        eCureMe – Diseases, Drugs & Treatments

                        *        MEDLINE PLUS

                       

                        *        NORD – index of rare diseases

                        *        PAEDIATRIC PAIN

                       

                        *        PATIENTS INFO – on acromegaly, Addison’s disease,

                                    Cushing’s syndrome, hyperparathyroidism, multiple endocrine

                                    neoplasia and prolactinoma 

                        *        Healing Well – info for patients on chronic diseases, incl. diabetes

                        *        Health Talk – Disease Education Network – “ask to the expert … “

                       

                        *        Understanding Diabetes –

                                    Barbara Davis Center for Childhood Diabetes

                        *        Online Diabetes Library - Joslin Diabetes Center

                        *        Understanding Gestational Diabetes

 

                        *        Diet therapy in diabetes

                        *        Diabetic Gourmet

                        *        Herbs and food additives & supplements for diabetes patients

 

                        *        Chair Aerobics

                        *        Diabetes Portal

                        *        Diabetes Monitor

                        *        Diabetes web-ring – in German language

 

                        *        Congenital Adrenal Hyperplasia – for patients and their families 

                        *        Adrenal Hyperplasia Network

                       

                        *        Center for Polycystic Ovary Syndrome (PCOS) – info for patients

 

                        *        Undescendent testicle – Harward Medical School

                        *        Cryptochidism – Lucille Packard Children’s Hospital

                        *        Cryptorchidism – General Health Information


                  *        Resources for Transgender, Transsexual, Transvestite People

                        *        The Birth of Venus - for patients with problems of sexual development

                        *        News & Info for children with problems of sexual development

                       

                        *        PATIENTS INFO – about growth retardation and treatment possiblities

                 

                  *        The Magic Foundation

                  *        HeightMatters – info and advise about growth disorders and their treatment

                  *        KidsGrowth

                         

                        *        Genentech Growth Hormone site – info about growth, GH deficiency & therapy

                        *        Eli Lilly - Growth site

                        *        Novo Nordisk  - Growth Hormone Therapy

                        *        Serono - Growing Together - Growing Together is an open forum, designed and written specifically for all with an interest in growth disorders, including specialists and parents of children with a growth disorder.

                       

                                *           Thyroid Function Tests

                               

                                *           The Pituitary Foundation

                                *           The Pituitary Society – Information for patients & parents

                                *           Diabetes Insipidus Foundation

 

                        *        Congenital Central Hypoventilation Syndrome (CCHS) Network

 

                                *           Canadian Society for Metabolic Diseases

                        *        MITO – Mitochondrial Disorders Network

                                *           Mitochondrial Disorders Foundation

                                *           Muscular Dystrophia Association

                               

                                *           Genetic Alliance  - Info & Support for patients with genetic syndromes

                                *           Genetic Health – selected support group websites

                       

                        *           The Childhood Brain Tumor Foundation

                        *        Children’s Brain Tumor Foundation

                       

                        *           Better Health Channel

                        *           Kids Health

                        *           Child and Family Webguide: Your Gateway to the Best Sites About Children

                        *           Keep Kids Healthy – a Pediatrician’s guide to Your children’s health and safety

                        *           Internet Resource for special children ( suggested by Dr. Kondekar )

 

 

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